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Thank you Robert, I got the kidney problems among others. Definitely not allowed enough space to make a comprehensive comment. Like I said in previous comment, infected with HIV in 1985. I know some are doing well, but you don't hear enough of those whose QOL keeps declining to the point that death sometimes (ok many times) feels like the best option. I have tried to find the statistics showing how many people diagnosed in 1985 are still alive today???
Thank you Henry, your the only one I can identify with. It's nice to know that some people are ageing well. Really, I'm happy for you. I've lived with HIV for 36 years ( diagnosis aug. 1985) and had a busy and fulfilling life worked full time as waiter and managed to be on the boards of many ASO's and attended a whole lot of conferences, big and small. My life became all about HIV. But in the last, maybe ten years, my QOL declined, mental which was already precarious and physical. oops limit rea
Living in France, I'm 79 next month. Good health, and undetectable numbers, since being accepted for a study of the first tri-therapy, which saved my life. I just started a new med last month, Dovato. I noted in the article that memory decline, etc. which I assumed was a result of my age, might be treatable and will ask my HIV doctor about that during next visit.
I was diagnosed with HIV in January 1986 and AIDS in October 1994. I have just about had it all. I've had PCP twice, CMV in the duodenum twice, shingles 5 times, along with several other internal problems. I have Avascular Necrosis which caused me to have 5 hip replacements and both shoulders and several caps on my teeth. It is a challenge for me to keep pushing to stay alive. ALL of my friends have died and I feel so alone. I have no family but I do have a husband of 16+ years that ignores me.
I will turn 73 in 1 month and I was diagnosed with full blown aids / less than 200 t cells in 1990. I feel it is now a chronic manageable illness
I agree with what Robert has to say in his comment, and Yuri said the Major reason for my luck is simple. I never took, until the latest, any HIV drug in full dose.' After 30.5 years being Positive, I to a large part agree with what they have said, my experience is that the more you know about your own body, and can take the lead in your own medical care, The better off you'll be.
I was diagnosed when the HIV+ test was first used, in 1985. Claims of earlier diagnoses are fantasies. I have not had any major HIV-related illnesses. Also during this 36-year period I got rid of Hep C which I must have gotten around the same time as HIV+, probably due to intravenous drug use. Major reason for my luck is simple. I never took, until the latest, any HIV drug in full dose. Never had to deal with blood in my urine from Crixivan, or humps, or major unpredictability of Norvir. 72 now.
HIVinTN
I've been pos since 21, I'll be 51 in a week, I never expected to be here today. The biggest challenge i face is stable housing. HOPWA is a great program, but it is only as good as the people running it in each city.In middle Tennessee HOPWA reps lack the basic knowledge of PLWH. HIV has become BIG business.Man running the programs have lost sight of the community,PLWH have not been included with the decisions especially when it comes to HIV Criminalization n Tennessee, ASO don't always know best
March 3, 2022 • Nashville