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I don't understand 'pill fatigue'. I've seen it in people who treat prep like a party drug but i've been on medication for 34 years. I thought i would die a long time ago. I've seen friends die. I keep taking it. I wonder why I have not died and maybe it would be easier to stop taking it... but i keep taking it. It keeps me alive. it keeps me here. despite the side effects, I'm still here... for some reason, doing whatever I am supposed to be doing.
Positive since 1985. Now 77. Started AZT as soon as I could get it. Took just about everything that came along as virus replicated and became resistant. Maybe missed, by accident, 10 doses over 40 years. I am not stupid. Pill side effects were awful for a long time. Better than being dead or horribly impaired. Lost my partner of 28 years because he silently stopped taking his meds and developed a brain tumor. Meds are expensive so it is like eating gold. Lucky me! No sympathy for pill fatigue.
I have been taking meds since day one over thirty five years ago. I’m so over it. I guess I’m lucky with insurance but at the beginning of the year I have so much anxiety about the cost that it is unbearable. Sometimes I just want to guit.
I would like to know more about his regiment change.
I was diagnosis 03/1998. I am in remarkably good health despite the HIV, per-diabetes, Hyperlipidemia. I take 7 medications a day, 2 twice a day, and about 11 supplements! Just amazed that my liver and kidneys are in phenomenal shape despite. The way I became 99%+ "adherent", was that from the very beginning, I used the "Med Boxes" and every Sunday for 27 years filled it up for the week, that way, because I have always worked full time and have a very busy schedule, this is a MUST to adhere.
Long Term Survivor
Read the whole article. Why was his housing situation left to the very bottom? That was key to his decision. If someone finds that taking 6 pills a day, by adding in a doctor's visit every month, is so very much easier than taking 7 pills a day, more power to them. But it seems as if adding the extra trip to the doctor would cause more anxiety. Worse, it would add a lot more time to get HIV treatment. The same trip to the pharmacy to pick up the other pills will do for getting HIV meds.
April 29, 2025